Wednesday, January 28, 2009

Mark Your Calenders

The legislative meet and greet for people with disabilities is next week. This is an awesome opportunity for you to meet with legislators and speak to them face to face about Clay's Law. It is on February 3rd at 4:30-6:00pm in the Capitol Rotunda.

If you plan to attend, please RSVP to Trisha Rouse at the Statewide Independent Living Council. The number is 801-463-1592. This is probably so that they can have name tags made and food and drink for enough people. If you forget to RSVP or just don't bother with it, you can still come, of course, but it helps the organizers to know numbers if at all possible. *UPDATE* Please email to RSPV*

If you plan to attend, you should e-mail your legislators if possible to let them know that you will be at the meet and greet to visit with them. It is our understanding that legislators will be more likely to attend and/or stay longer if they have received several or more e-mails of constituents planning to visit with them. If you have already spoken to your legislator by phone or in person, it's a good idea to thank them for that in the e-mail.

Everyone should bring as many people as they can to talk to the legislator--spouses, parents, siblings, nieces, nephews, uncles, aunts, pastors, bishops, neighbors, friends. The more folks we have e-mailing they are coming and the more that show up, the better. You may have to wait for the legislative session to end for the day for the legislators to come visit. They could also leave very quickly too. Coming at 4:30 probably means you have to wait, but coming at 5:45 probably means your legislator is not still there!

Thanks Betsy for getting us this great information!

Tuesday, January 27, 2009

Utah Business Support for Clay's Law

We'd like to thank Fraser Bullock for all of the great support that he has given to Clay's Law. He's been working hard right along with us to ensure that SB-43 passes. He recently gained the support of many influential business leaders of Utah. Fraser shared with us that, "Virtually every one I contact in the business community thinks this is obvious to do."

Thanks Fraser, we are so fortunate to have you on our team!!!

Supporters of Clay's Law

Individual: Title - Company

JJim Sorenson: CEO - The Sorenson Companies
Fraser Bullock: Managing Dir - Sorenson Capital
Scott Anderson: President - Zions Bank
Josh James: CEO - Omniture
Steve Creamer: CEO - Energy Solutions
Jim Thornton: CEO - Provo Craft
Blake Roney: Chairman - NuSkin
Randy Hales: CEO - Mity Enterprises
Kirk Benson: CEO - Headwaters
Dave Layton: CEO - Layton Construction
Paul Magleby: CEO - Magleby Construction
James Patterson: President - Patterson Construction
Jack Sunderlage: CEO - Content Watch
Glen Mella: President - Control 4
Greg Butterfield: Former CEO - Altiris
Gary Crocker: Chairman - Merrimack
Steve Christensen: CEO - Broadweave
Henry Marsh: Founder - Mona Vie
Brent Wood: CEO - Wencor
Steve Peterson: CEO - Peterson, Inc.
Ron Smart: CEO - Wondoor
John Miller: CEO - National Beef
Phil Thompson: Former CEO - Industrial Supply
Nolan Karros: Former Speaker of the House
Ken Bullock: Executive Director - Utah League of Cities and Towns
Bob Frankenberg: Former CEO - Novell
Gordon Strachan: Partner - Strachan and Strachan
Dinesh Patel: Partner - vSpring
Jim Dreyfous: Partner - UV Ventures
Dave Moon: Partner - EsNet
Ralph Yarrow: Former CEO - Canopy
Brent Israelsen: Founder - Digital Bridge
Fred Zirkle: Partner - Industry Pro

Thursday, January 22, 2009

Senate Bill 43, Clay's Law

We know that you have all been waiting to see the legislation. Well it has been filed and numbered now. So go ahead and read it!

Bill Highlights:

- Requires private health insurance companies to provide coverage for the diagnosis and treatment of autism spectrum disorder

- Coverage will be provided to individuals under the age of 17

- Coverage under this bill is subject to an maximum benefit of $50,000 annually for a child who is less than 9 years old and a maximum benefit of $25,000 annually for a child who is between 9 and 17 years old

- Coverage provided for treatment of autism spectrum disorders, defined as any treatment generally accepted by the medical community or the American Academy of Pediatrics as an effective treatment for children with autism

- The bill includes coverage of the following treatments: Habilitative or rehabilitative care, Early intensive behavior therapy, Pharmacy care, Psychiatric care, Psychological care, Therapeutic care, Occupational therapy, and Speech therapy

- The bill applies only to fully-funded health plans governed by state

- If passed the bill will go into effect on July 1, 2010


Please share this video with your legislators, friends, neighbors, and co-workers. This video is very compelling, and is sure to help convince everyone to vote for Clay's Law.

Press Conference Went Great!

Thank you to everyone who was able to attend the press conference to show support for Clay's Law. It was extremely effective. We had so much press there, and they stayed the whole time and asked questions after it was all done. Let's hope they run some great stories about it.
Representative Barrus, Senator Stephenson, Holly Rechis, Brittany Recalde, Leeann Whiffen

To put a face to a name. This is Leeann Whiffen and Brittany Recalde.... The Utah Autism Coalition Founders.

We loved having so many supporters there with their signs and photos.

Press Release

*Click on each image to enlarge*

Tuesday, January 20, 2009

Press Advisory

Leeann Whiffen
801-787-2273 cell
801-763-8233 home

Coalition to Update Utah Insurance Coverage for Autism

Legislators, business leaders and families join together in announcing a bill to update medical insurance to eliminate discrimination of and provide coverage for children with autism. “Clay’s Law”, named after a child who, after successful treatment, no longer has autism, will help countless children and save taxpayers in Utah millions of dollars.

When: Thursday, January 22, 2009
11 a.m. – 11:30 a.m.

Where: Utah State Capitol Rotunda

Who: Sen. Howard Stephenson (Utah Senate District 11), Rep. Roger Barrus (Utah House District 18), Fraser Bullock (former CEO 2002 Olympic Winter Games - in absentia), Paul Carbone, MD (Intermountain Pediatric Society), Steve Michalski (autism specialist), Leeann Whiffen (Clay’s mother), Brittany Recalde (parent), and Holly Rechis (parent).

Ample space will be available for photography (still and video) and audio recording. A press Question & Answer session will follow the brief comments. If you would like to make arrangements to interview any of the speakers listed above, or want more information about the Utah Autism Coalition, please call Leeann Whiffen.

# # # #

Monday, January 19, 2009

Extra Extra!!! Press Conference Thursday!

Join us at our press conference to announce Clay's Law. We need to show the media that you support this.

Where: Utah State Capitol Rotunda
When: Thursday January 22nd at 11am

Also, call the media stations, newspapers and radio. Let them know that you are interested in Autism Legislation. Ask them to cover any information about Clay's Law.

Chanel 5: (801) KSL-5500
Chanel 2: (801) 415-2222
Chanel 4: (801) 975-4444

Deseret News: (801) 237-2100
Salt Lake Tribune: (801) 257-8742

Tuesday, January 13, 2009

Clay's Law Update

By now you should have received an email stating who your legislators are and asking you to make the call to them. We hope that you have been able to find the time in your busy schedules to make this a priority. We have heard some great feedback so far. Thank you to those who have gotten back to us with your legislators responses.

We have had a few people write to ask for more information about Clay’s Law. If you would like to know more about the bill before you call your legislators, you can read our draft legislation on our website, www. is also a great document written by Autism Speaks with some arguments in favor of legislation like Clays Law. It can be found here:

We have had a few meetings with policy writers about our bill. We are very close to having it finished and filed. As soon as we get our hands on it we will put it on our website and send everyone an email letting you know that it is finished and ready for you to view.

Lastly, we have just found out about a great opportunity for all of us to speak face to face with our legislators. Every year there is a reception held at the Capitol for families of those with disabilities to have a meet and greet with legislators. This years reception is scheduled for February 3rd at 4:30-6:00pm in the Capitol Rotunda. It is our understanding that not every legislator attends. Most come out after their meetings are finished for the day. So, there may not be many there right at 4:30pm. You may have to wait to be able to speak with them. We plan to attend and speak with as many legislators as we can about Clay’s Law and ask them to Co-sponsor. Please join us so that they can see just how many people want Clay’s Law passed.

We truly appreciate each and every one of you calling and writing your legislators. This is such an important bill, that will not get passed without support from people all over the state.

Wednesday, January 7, 2009

Contact your senator



Contact Info

Luz Robles


1004 N Morton Drive

Salt Lake City, UT 84116

Minority Caucus Manager

w. 801-521-0407

h. 801-953-0905

Scott D. McCoy


560 East 700 South

Salt Lake City, UT 84102

h. 801-359-2544

w. 801-533-8383

Gene Davis


865 Parkway Avenue

Salt Lake City, UT 84106

h. 801-484-9428

f. 801-484-9442

Patricia W. Jones


4571 Sycamore Drive

Holladay, UT 84117

Minority Leader

w. 801-322-5722

h. 801-278-7667

f. 801-322-5725

Karen Mayne


5044 Bannock Circle

West Valley City, UT 84120

Assistant Minority Whip

h. 801-968-7756

Michael G. Waddoups


2868 W. Matterhorn Drive

W Jordan, UT 84084

President of the Senate

w. 801-355-1136

h. 801-967-0225

Ross I. Romero


1150 South 1400 East

Salt Lake City, UT 84105

w. 801-844-7229

Minority Whip

h. 801-364-2451

f. 801-328-0537

Karen W. Morgan


8378 Austrian Way

Cottonwood Heights, UT 84121

w. 801-538-1406

h. 801-943-0067

f. 801-943-9614

Wayne L. Niederhauser


3182 E. Granite Woods Lane

Sandy, UT 84092

w. 801-984-5770

h. 801-942-3398

f. 1-866-283-7751

D. Chris Buttars


9241 S Lisa Ave

W Jordan, UT 84088

h. 801-561-0535

f. 801-561-3242

Howard A. Stephenson


1038 East 13590 So.

Draper, UT 84020

w. 801-972-8814

h. 801-576-1022

Brent H. Goodfellow


3620 South 6000 W

WVC, UT 84128

h. 801-968-0626

c. 801-556-4871

Mark B. Madsen


PO Box 572

Lehi, UT 84043

c. 801-361-4787

John L. Valentine


857 E 970 North

Orem, UT 84097

w. 801-373-6345

h. 801-224-1693

f. 801-377-4991

Margaret Dayton


97 W Westview Dr

Orem, UT 84058

h. 801-221-0623

f. 801-221-2513

Curt Bramble


3663 N 870 E

Provo, UT 84604

w. 801-373-1040

h. 801-226-3663

c. 801-361-5802

f. 801-812-8297

Peter C. Knudson


1209 Michelle Drive

Brigham City, UT 84302

w. 435-723-6366

h. 435-723-2035

f. 435-723-6371

Jon J. Greiner


4232 Fern Drive

Ogden, UT 84403

w. 801-629-8226

h. 801-621-0423

Allen Christensen


1233 E 2250 North

No. Ogden, UT 84414

h. 801-782-5600

c. 801-710-0315

Scott Jenkins


4385 W 1975 N

Plain City, UT 84404

Majority Whip

w. 801-621-5412

h. 801-731-5120

Sheldon Killpack


3406 South 875 West

Syracuse UT 84075

Majority Leader

h. 801-773-5486

Greg Bell


744 Eagle Way

Fruit Heights, UT 84037

Assistant Majority Whip

w. 801-531-8900

Daniel R. Liljenquist


553 So. Davis Blvd

Bountiful, UT 84010

h. 801-294-2378

Ralph Okerlund


248 S 500 West

Monroe, UT 84754

h. 435-527-3370

c. 435-979-7077

f. 435-527-3370

Lyle Hillyard


595 S Riverwoods Parkway, Suite 100

Logan, UT 84321

w. 435-752-2610

h. 435-753-0043

f. 435-753-8895

Kevin T. Van Tassell


3424 W 1500 North

Vernal, UT 84078

w. 435-789-7082, 435-647-6564

h. 435-789-0724

f. 435-789-8411

David P. Hinkins


P.O. Box 485

Orangeville, UT 84537

w. 435-748-2828

h. 435-384-5550

f. 435-748-2089

Dennis E. Stowell


PO Box 796

Parowan, UT 84761

h. 435-477-8143

c. 435-559-8143

f. 435-477-8111

Stephen H. Urquhart


634 E 1100 South

St. George, UT 84790

c. 435-668-7759

f. 435-272-4484