Tuesday, August 7, 2012

ATTN: Utah parents of 2-5 year old children with autism

Confused about TREATMENT options for your 2-5 year old child with autism in Utah?

Private insurance, The PEHP Pilot program, The Utah Autism Treatment Fund or The Utah Autism Medicaid Waiver?

There has been a lot of information published recently on each of these treatment options. Are you still confused on which one to choose or how to enroll your child? You are probably not alone.

We would like to know if there is a need for a seminar on this topic and, if so, what location. Please respond with whether or not you would be interested in a free workshop on this issue and what city would be most convenient for you.

If there is enough demand in multiple locations we may hold more than one workshop. If there is no demand, we will continue to rely on the published information on each treatment program... so if this is something you need please speak up!

(For those parents whose children do not fit in this age range - please know that the Utah Autism Coalition will continue to fight for effective evidence-based medical treatment for all children with autism in the state of Utah. To join this effort go to http://www.utahautismcoalition.org and click on 'Get Involved Now'.)

Monday, August 6, 2012

Medicaid Autism Waiver Pilot

Please review the following fact sheets regarding the Medicaid Autism Waiver Pilot. This is not an income-based program, so if you have a child with autism between the ages of 2-5 please contact Josip Ambrenac – Autism Waiver Liaison at jambrena@utah.gov or (801) 538-6090. You can also learn more at http://www.health.utah.gov/autismwaiver/.

Utah Autism Treatment Fund Update

The Utah Autism Treatment Fund program has recently finalized the rule for the Request for Grant Application process for providers that wish to participate in this program. Currently there is $910,000 available for the treatment of children with autism in Utah between the ages of 2-5. There is speculation that this fund may increase based on promised contributions from insurance providers. This funding will be awarded to qualifying providers in grant form and the published rule clarifies how applications will be evaluated and funding will be awarded.

If you are a provider interested in participating in this program or know of a provider you would like to access through this program please visit the following link: http://www.health.utah.gov/cshcn/AutismTxAcct/index.html.

The submission deadline for providers is August 21st, 2012, so please submit your proposal ASAP. If you are a parent interested in having your child access treatment through this fund please watch for updates on link above. Parents and guardians can enroll children with autism directly through providers that have received funding. You can direct questions regarding this program to rgiles@utah.gov. We will post more information as it becomes available.

Friday, August 3, 2012

Have you invited your legislator to the Utah Autism Coalition Summer Social?

Give them a call today and personally invite them to bring their family with your family to this great event! Nothing helps our legislators understand autism and the needs of our children like seeing it first hand and experiencing a portion of the joy and challenges living with a child with autism brings. 

To find your current State Representative and Senator, visit the following link: http://elections.utah.gov/map/district-maps to find your House and Senate District numbers and then use the following roster to access your legislator's contact information: http://le.utah.gov/Documents/2012roster.pdf


Challenge yourself TODAY to pick up the phone, give them a call and say this:

Hi Senator/Representative __________. My name is __________. I am a member of your legislative district and would like to invite you and your family to join my family and others from your district on Saturday, August 18th at Sugar House Park for the Utah Autism Coalition Summer Social between 11am and 2pm. Would you be able to attend with us that day? 

[Pause, listen to response, thank them either way].

Whether or not they are able to come is not important - summer is busy and we all do our best. The important things from this exercise are:
  1. They are invited 
  2. They are aware that members of their district are impacted by autism
If you have not yet RSVP'd or shared information about the Summer Social, the details are provided below:


The Utah Autism Summer Social was such a hit last year that we are going to do it again! See below for details:

WHO: Families and individuals affected by autism spectrum disorder and their legislators. This event is open to the public and everyone is welcome to attend.

WHAT: Meet your politicians and share your concerns for families and individuals affected by autism. Enjoy some fun with bounce houses, face painting, clowns, sensory activities and crafts, a balloon launch, food and much more!

WHEN: August 18th, 2012 from 11am - 2pm

WHERE: Sugar House Park: 1400 East 2100 South, SLC UT. 
Sugar Beet Pavilion – Located near the amphitheater in the southeast corner of the park.

Let's work TOGETHER for autism insurance NOW!